A Grief Journey: The Gift of the Ordinary

"We often miss what is important on the quest for extraordinary." Brene Brown

I am a person of routine. I like making lists and checking off the things accomplished. I even write lists of things I’ve already done just to check them off. You too?

Well perhaps your day includes making breakfast, paying a bill online, getting an oil change, the drop off line and lists upon lists of to-dos. Ordinary life consists of things like grocery lists, school and church event calendars and family vacations.

Just last year I longed for the ordinary. The struggles of normal life of juggling work, home and ministry felt a million miles away. I was sitting in the cardiac intensive care unit day after day, hour after hour for months. Today I wouldn’t exchange a single second of that time with my son for anything spectacular much less something ordinary. But, some days sitting in that sterile, fluorescent-lite hospital room, I would dream of simple days of needing to mow the grass and run to the grocery store. These tasks don’t disappear when your child is hospitalized but they certainly don’t matter the way they once did.

Right after losing our son, the ordinary tasks of “adulting” were nearly impossible. Trying to write simple emails or texts took herculean mind power.  Yet I wanted the ordinary. I wanted to be normal and to be able to go to the grocery store without feeling out of body and in a fog.

I remember standing among strangers feeling as though I had come back from war and all my wounds were covered by my clothing. They didn’t know where I had been, what I had seen, what I had lost or that my wounds were so fresh that some were still bleeding through the hidden bandages. I wanted to run or scream or stop them and tell them, “Do you know where I’ve been? Do you know there’s a war? Do you know they are dying?” But, I just stood there observing the ordinary; life happening all around me.

Choosing fresh fruit

Checking the mail

Tying a shoe

Chasing after the bus

Scolding a child

Holding hands

Looking back over the months spent with our son, I realized there was a around a three month period where the only places I went were our apartment and the hospital. I stopped communication with everyone but my husband, my sons and the doctors/nurses. I only knew the war. All I could bear was the war; the war my son was fighting to stay alive. It was his fight but I was in the war with him. There was no ordinary.

It’s been around 400 days since we left the war. It’s not over and is still going on in that same hospital room. It’s a new child now because our son is done. Our son will no longer know the war and he will never know the ordinary.

I wish he got to know the ordinary for just a little while. Soccer games, Sunday school, crushes on little girls, playing with his big brother and bath time. But, really…are those memories ordinary?

The way I think is different now that I’m outside the war. When I’m observing every day, ordinary life I wonder things like,

“Are those her only two children or does she have more in heaven like I do?”

“Oh, she’s about 6 months pregnant. Oh Jesus, please knit that baby together with a full heart.”

“I can only imagine what it would be like with two wild toddler boys to running around this little town home! I might be crazy by now!”

I’ve realized that all the little things we do that make up this ordinary life really aren’t all that ordinary. Ordinary means commonplace, normal, standard. My special son taught me that at the end of the day nothing is truly ordinary. Doing laundry, going to work, caring for our homes, giving to the church, sharing our hearts, completing those to-do lists every week become extraordinary when we consider them as acts of love and ways to build lasting memories.

For example, a few weeks ago my son was playing in Chick Fil A with several little girls. Up the slide and down the slide. Squeals heard for miles. Seemingly so ordinary. No wounds visible to the outside. Yet, our big boy has lost his little brother and those little girls had lost their dad just a few days earlier. Simple playing. Hidden wounds. So extraordinary.

I can no longer do a task in and of itself without connecting it to the larger purpose of my life to love and serve others. Sometimes I still unload the dishwasher on autopilot but when I lay my head down at night, I think about the war. His war. My war wounds are still not visible to those around me. I’m sure your wounds are also hidden. So let’s remember together that life is not commonplace. There is always a bigger story going on in the lives of those around us. Let’s step into the ordinary of others’ lives to find the extraordinary; perhaps engaging deeply enough in hopes to stop the hidden bleeding. Let’s invest in others’ hearts by sharing our own wounds.

I’ve realized my strong son and the grief we have endured has exposed me to the gift of the ordinary and for that I am thankful.

“The most extraordinary thing in the world is an ordinary man and an ordinary woman and their ordinary children.” ― G.K. Chesterton

One Year in Heaven

One Year in Heaven. I know that there is no time there. No clocks, seconds, minutes, hours. No need for the sun to shine because our God is bright enough in Himself to be the light of all of heaven. There is no waiting. There is no crying. No tears. No sickness. No more dying. No separation. No confusion. There is worship. There is God. Jesus. The Holy Spirit. My grandparents, my anchors. My son, my heart.

One year in heaven might feel like one second or one million years. There is worship showing up in all different forms. Perhaps laying at the thrown of God in awe. Perhaps singing and dancing or building something beautiful or painting a masterpiece. Worship. Worship. Worship. No tears.

One year in heaven without pain. No surgery. No medication. No blood tests or needles. No beeping machines. No flat lines. No sin. No brokenness. No hospitals. There is joy unspeakable. Perfect peace. What we know in part, you know fully there. Glorified like your savior, knowing the whole story of redemption. What a beautiful story, indeed.

One year in heaven. So far, one year ahead of me. I don’t know how many years you will be there, my son, before I arrive. I imagine you whole. This isn’t a fairytale to hold in my grief. It is true. As I write through the tears, my broken heart knows that your heart is whole. I don’t understand it or like it. I can’t even fully appreciate it but it is true.

One year in heaven is one year away from this mama who loves you so much. I can still recall how you would jump in my womb and get the hiccups and the fear of your early delivery, not knowing if you would breathe. The first time we met face to face and you WERE breathing! All of our little talks about life and the world beyond hospital walls are still with me. Your cheeks are the best in the whole world. Your sideburns are legendary. Your big brother talks about you each time we see hand sanitizer. “Bubbles! We get those when we see Huddy!”  Your daddy is brave and works so hard and I catch him with tears rolling down his face as he remembers you, sweet boy. He wanted to teach you to fly a helicopter and take you to the farm. A dream lost. We miss you in the big things like Christmas morning but also in the little moments like bath time. I see your spot in our family at our table, in our car, in the grocery cart next to Graham. I see tired mamas with two little ones and I just stare at them to figure out if their kids are my kids’ ages. To see what it would look like if you were here with us. Just a glimpse of what it would be for us with two. With Huddy. Big Brother Grahambo and I have a game. We play, “If Huddy were here, what would we be doing?” Often his answers are things like hiding in the closet, dancing, playing with trains. My answer is kissing those awesome cheeks.

One year in heaven feels like forever for me. Part of me went with you. That’s okay, I’m your mama. The rest of me will arrive when God chooses. Sweet boy, worship has been so hard for this mama and done out of obedience and not delight. But, I’ve learned that is what we still have in common. You worship Him there and I’ll worship Him here (though it isn't always pretty). See, that’s what we’d do if Huddy were here or we were all in heaven, we would worship Jesus.

Let us worship...out of obedience and awe....

The Lord gives and the Lord takes away.

Blessed be the name of the Lord, in heaven and on earth.

Mama loves you, sweet boy.

You enjoy Jesus.

Sweet, sweet Jesus.

He surely is enough, even when your son has spent one year in heaven.

You Don't Know Her Name But She Mattered

It was a normal day. As normal as life in the intensive care unit can be.

I was holding my precious baby with half a heart and telling him stories about how I fell in love with his daddy walking the streets of Manhattan. We had been in the unit for months now. I lost track of time and I had to look outside to see if it were day or night. By this point I could speak the language of acronyms thrown around by doctors and confirm dosing on medications for my son like a seasoned pharmacist. I knew what every beep meant and which ones shouldn’t make me tremble and which called the cavalry.

I had so many days like this one watching his numbers rise and fall, conversations with the new fellow who knew less about my son medically than I did and hearing about life outside these walls from what the nurses did on their shifts away from the chaos. Those medical warriors could be saving a life and at the same time talking about their favorite restaurant. It was a normal day for them too.

Normal became unimaginable as I picked out phrases being
said across the room. The specialist and his fellow were with Baby Girl in bed one. We were bed four. We had come to know Baby Girl after months of rooming together. We didn’t know her specific heart challenges but we knew her cries and that she loved to sit in her swing.

Life in the hospital is really never normal but a routine is built. I learned that I would have to step out of the unit when certain alarms sounded, a child was being admitted or coming back from surgery. On this particular day, I was tucked away rocking our boy and no one asked me to step out. I could hear the doctor answer the parents’ questions, “We could operate but we know it won’t work. She will require the same surgery again and again for it simply not to work in the end. We shouldn't put her through that. Of course, you can seek a second opinion but they will say the same.” Baby Girl’s mom pleads, “But, I read something online. Can’t you try that?” The conversation continued for around twenty minutes and the questions became more desperate. A mama and a daddy’s heart pleading for solution.

The last thing I overheard was the doctor saying, “There is simply no more we can do but make sure she is as comfortable as possible.”

Her stunned daddy just stood there over Baby Girl’s bed. No outward emotion. Just stunned. Lost. Her mama kept tearfully asking unanswerable questions.

The best of the best had nothing to offer.

I don’t know what happened with Baby Girl after she left our unit. I think about her often. She was just under two years old. She was a foster child with a severe heart defect. She was loved by her birth parents and her foster parents. Her short life was more complicated than it should have been. She didn’t have hundreds following her story or t-shirts made in her honor. No 5k’s were run in her name. No newspaper articles printed celebrating her fight.

But, I’ll never forget her.

She mattered.

She fought.

She is loved.

For whoever touches you, touches the apple of His eye.
Zechariah 2:8b

Baby Girl, your hips don’t lie J. (A little inside joke between us girls.)

Is God Still Good When Your Child Dies?

As Christians we study the Bible to learn the character of the God we worship. We find that He is sovereign, holy, eternal while simultaneously being tender, loving and good.  Our entire purpose and existence is to glorify this good God and enjoy Him forever not just now in this world but for all eternity. These are the truths of Christianity that we hold dear.  As children we sing, "God is so good. God is so good. God is so good. He's so good to me."

But, is God still good when your child dies?

The last year and a half of my life has been excruciating as I watched my precious baby boy come into and leave this world after just eight months and three days.

So as a Christian I have been forced to my knees in a new way of surrender. To surrender my child to death has caused me to question even the deepest truths of my life and faith including the goodness of God.  It has been near impossible to walk in the depths of despair and say words like the ones of Psalm 106:1.

Say them with me:

"Praise the LORD! Oh give thanks to the LORD, for He is good; For His lovingkindness is everlasting."

Now let’s try saying them as your child breathes his last breath. Or as your spouse walks out the door. Or as the power is shut off. Or as you celebrate Christmas without your loved one. Or as you are huddled in a corner in Aleppo with your terrified family. But, we should say them at these most horrific times because these holy words are true.

I've doubted the goodness of God in my situation and perhaps you have too. When everything in me screams that there is no way God can be good, I must look to His Word and not let my faith be swayed by my emotions or my circumstances. Knowing that God is good doesn't diminish my pain or loss but it gives me firm, eternal ground to stand on. My circumstance is not good. But, He is good.

This I know is true: God's goodness is eternal. He was good when the people of Israel were enslaved. He was good when Jesus was on the cross. He was good during World War II and the Holocaust. He was good when my dad was at war in Vietnam and He is good today as I sit in my home looking at my son's Christmas stocking without him.

We intentionally (though a bit hesitantly) chose our Christmas card this year to remind ourselves that the goodness of God is eternal and not circumstantial. We chose this card because it is still true even in the year our son died.

This Christmas night I’m so thankful that God's goodness is forever. Somehow, in His sovereign will, He will work even the darkest, ugliest, most painful parts of our broken hearts into His good story of redemption alongside the story of the nativity. God doesn't explain Himself fully to us in this life but what we know dimly now, we will know fully when we see Him face to face in all His goodness.