Monday Appointment Update

So not to hold back....yesterday was horrible!

We arrived at the Children's Hospital of Philadelphia (CHOP) at 6:45am and left at 6:45pm and the entire time was in appointments of some kind. I had an MRI for over an hour...that was horrific....then a three hour sonogram which involves lots of pushing on my abdomen. We then met with a specialist who gave us very difficult news. They needed to remove the fluid from the baby's chest pretty much immediately because it was pushing the heart to one side and deflating one of his lungs.

They could not give me any medication as they pushed the needle to my belly and then into the baby. I am a massive chicken but I survived and it did not start labor. I got shots, blood work and they did another electrocardiogram on the baby for over an hour.

We will be getting results back from the fluid in the next few days. They are trying to determine why this is happening. It could be genetic, a virus, an infection, etc. We are begging God that the fluid will not return and that our little one is completely normal in all ways, mentally and physically.

Pray for Corey as he is flying everyday now. Pray for peace and for safety.

Pray for me as I undergo more testing today and tomorrow.

Pray for our sweet baby. We want the best for him, whatever that is. We want God to show us His healing power and His supernatural peace.

There are many, many decisions to make and that is very overwhelming in the midst of so much.

I appreciate the prayers and emails. It means a lot.

http://www.gofundme.com/havehalfaheart

Update from Philly

Friends and family,

Crystal (sis in law/best friend) and I are in Philadelphia. I was supposed to have my appointment on Friday but it was moved to tomorrow (Monday). I will have tests ALL DAY tomorrow (MRI's, 3 hour ultrasound and an electrocardiogram on the baby's heart). From there the doctors will decide what next steps will be taken including possibly taking the fluid off of the lung.

I'm pretty nervous about all of this so definitely keep praying for our sweet baby boy and for me. My incredible, pilot husband is flying out in Texas for work and my parents have my special little Graham.

I'm thankful for all the gifts, prayers and encouraging words. We need them!

I'll update as soon as possible. Pray I don't have to stay all week!!!

1. When peace, like a river, attendeth my way,
   When sorrows like sea billows roll;
   Whatever my lot, Thou hast taught me to say,
   It is well, it is well with my soul.
   • 
     
   • Refrain:
     It is well with my soul,
     It is well, it is well with my soul.

Urgent Trip to Philly for Procedure

Friends and family, much prayer is needed for our family as I have to travel to Philadelphia for a procedure to have the fluid drained off of the baby. I don't know how long they will keep me .

I hate leaving my family and especially little Graham. Please, please pray for us. This procedure is risky and painful and this is extremely overwhelming to have to drop everything with work and home to go to the Children's Hospital of Philadelphia with little to no notice but this is what the specialists say is best.

Pray for my incredible husband as he is enduring so much right now as well.

Thanks to my family and friends for helping in so many ways including creating this site for us:

http://www.gofundme.com/havehalfaheart

Thank you for partnering with us and being in this valley alongside us!

Quick Update on Baby Sylvestre

Today we had another appointment with a specialist about Baby Boy Sylvestre. There is fluid around the right lung and they need to monitor it closely which means I will have to have a sonogram twice a week. The fluid can cause preterm labor which could be fatal for our little one. The other major concern is that with 2 unrelated issues going on (heart and lung), there could be a problem with the baby's chromosomes leading to pretty severe developmental issues.

Prayer needs:
Pray for a healthy, fully developed heart
Normal chromosomes (no deletions, no additions)
Pray that the fluid would go away and not have to be drained at birth; draining fluid is complicated, on-going and makes open heart surgery even more complicated
Pray that I will not go into preterm labor and will make it to our scheduled c-section on August 19th
Pray for a miracle for our baby and for faith for Corey & I

Urgent Prayer for Baby Boy Sylvestre!

We found out on Friday that our sweet baby boy due in August not only has a very severe heart defect called hypo-plastic left heart syndrome (a two-chambered heart) but he also has fluid on his bowels and right lung. The doctors do not know why this is happening and it is life-threatening.

We see a specialist tomorrow for more images and we are begging God for a miracle for our sweet boy who we want to hold, bring home and raise alongside his big brother, Graham.

We are devastated to say the least but we also know that God is able to do immeasurably more than we ask or imagine. We won't stop asking! Please pray for clear lungs, clear bowel, normal chromosomes, and a full healthy heart for our sweet boy.

Ephesians 3:20-21

 20 Now to him who is able to do immeasurably more than all we ask or imagine, according to his power that is at work within us, 21 to him be glory in the church and in Christ Jesus throughout all generations, for ever and ever! Amen.